Learning to Breathe Again (Blog #151)

For the last hour I’ve been scrolling and scrolling through old photos hoping to come up with a blog idea. However, it’s been a long day, I’m exhausted, and all I can think is, No, that won’t work. But I told a good friend today that probably the best thing I’ve ever done–in my entire life–was to have sinus surgery, so when I saw pictures from the surgery, I thought, That might work. (One hour, and I’ve got a solid maybe.) This–it would appear–is the life of a writer. Doesn’t it sound glorious? Sign up now and you can live with your parents too!

But I digress.

For nearly two decades, I had multiple sinus infections a year. I know I’ve written about this before, but it was hell. For the longest time, I’d have an infection–marked by fatigue, colorful snot, and sometimes fever–once every six to twelve weeks. Maybe more often than that. At some point, I stopped counting. But it seems as if I have just as many memories being sick as I do being well. I was sick in high school the night Mom and Dee-Anne and I drove to Little Rock to see Les Mis. I could barely put my clothes on. I was sick probably half the times I went to Houston for an annual Lindy Hop convention. I was sick almost every Thanksgiving.

In high school I used to think that God was punishing me for–I don’t know–being a straight A student. I’d pray–and pray–and pray–and still wake up coughing up blood-colored snot. Before I knew what to call it, I’d tell my family, “I feel weak,” and my Dad would say that I was burning the candle at both ends. I’d think, I just need to slow down.

Over the years, I tried everything I knew to try. I took a ton of antibiotics, swore them off, took a ton more–with steroids. Had an allergic reaction, whatever. Alternatively, I ordered things off television, off websites. I saw a naturopathic doctor who suggested herbs for my immune system. I took so many herbs, drank so many teas. I looked into the emotional connection to sinus infections (crying inside). None of it solved the problem, but I did learn a lot. In fact, having constant sinus infections is one of the things that led me to Reiki, Chi Kung, and meditation. Again, none of it fixed them problem, but they’ve all added a multitude of benefits to my emotional, physical, and spiritual life. So I don’t consider everything a waste.

Except maybe the Neti Pot, that contraption you use to pour water in one nostril until it runs out the other. If I had a nickel for every time someone said, “Have you tried a Neti Pot?” I’d be set. YES, I have tried a fucking Neti Pot–it didn’t work.

Whenever I’d get sick–again–I’d get overwhelmed and think, I can’t do this anymore. Of course, I did, since I didn’t have much choice in the matter. Plus, things always look different in the morning. Which morning, I can’t say. But go through enough mornings, and things will look different. For me, I guess things started to turn around a few years ago when my primary care doctor suggested seeing an ENT (ear, nose, and throat doctor). Now there’s an idea! So that’s what I did–locally–and the doctor explained that 1) my septum was blocked, a lot, and 2) my sinuses weren’t draining. Basically, I always had an infection “on deck.” His recommendation? Surgery, to the tune of approximately $14,000 dollars.

Well, shit. I don’t have insurance.

Or $14,000.

Fast forward to just before this last Christmas, and I was living in Fayetteville, about to travel to New York City, and sick–again. So I called my ENT’s office to finally do something about it. I had insurance, and even though I had a high deductible, I didn’t care. I had to do something. Well, no one answered the phone. I’m sure you’ve been on hold before. So I hung up and called a clinic in Rogers (Mercy Ear, Nose, and Throat).

“Can you come next week?” they asked.

“Ugh. I’ll be out-of-state next week.”

“What about two hours from now? Can you come then?”

“I’ll be there.”

Y’all, I hate to say this because it was twenty freaking years, but it was worth the wait. I’ve never been treated so well by an entire group of medical professionals. I don’t intend for this to become a commercial, but everyone from start to finish was amazing. (Pick up your phone and order now.) But seriously, my doctor’s name was Chad (actually Dr. Chad Putman, but I try to keep it informal on the blog), and he paid attention, asked questions, then laid out a plan–drugs first, a CT scan, then possibly surgery. “I don’t want to jump the gun,” he said. So we took it step by step, and six weeks later, I was in an operating room.

By that time, Chad had explained that my previous doctor had been correct–my nose was blocked 80 percent on one side and 90 percent on the other. Part of my sinuses weren’t draining, which meant they were constantly “smoldering.” (Isn’t this fun to talk about?) But whereas the previous doctor had suggested three procedures, Chad suggested six in order to really open everything up. The day of the surgery–February 15–he told my parents, “We’ll treat him like family.”

Uh, I know we’re family and all, but my butt is hanging out of this gown.

Surgery itself was a breeze. The anesthesiologist came in the room where I was waiting with Mom and Dad and said, “I’m going to give you a cocktail.”

I said, “I like cocktails.”

Then they wheeled me back to the operating room, moved me to a different table, and that was it. The next thing I knew, I woke up back in my room with a sling around my nose to catch the blood. Later Mom said that I was repeating myself a lot. How’d it go? God, it’s bright in there. May I have my sunglasses?

Mom and Dad took care of me for a week. Looking back, it was sort of a trial run for my living with them now. For the first several days, I couldn’t breathe through my nose at all and slept in a chair. Per Chad’s instructions, I used a Neti Pot (!) twice a day to clean out scabs. It wasn’t pretty, but it was pretty fascinating. I’d look in the sink, see all the blood, and wonder how I was still alive. But the Neti Pot actually worked and still does. Chad said it didn’t work before because my sinuses were blocked, so the water (or medicine spray or whatever) couldn’t actually get where it needed to go.

This is when I still couldn’t breathe and felt like Voldemort.

Within six weeks, I was pretty much back to normal–except way, way better. I could actually breathe. Wow, I thought, is this how much air regular people get? No wonder everyone is so damn happy. It’s oxygen. Six months post-surgery, I haven’t had a single infection, just one cold that kind of hung on. And if all this air and lack of infections is any indication of how things will go in the future–I’ll take it. The last time I saw Chad, I told him I was so grateful to finally have–

“An answer,” he said.

I don’t know why life works like this, why you can struggle with something for twenty years, do everything you know to do, and then one day–a miracle. I don’t know what finally makes the stars align, why God has the need to be so mysterious about all of his ways. This week, or the last twenty years rather, I’ve been working overtime to manage my emotions, not be overwhelmed by life, and find an answer to this thing called suffering. Of course, some days it feels like I’ve tried everything, that things will never look different no matter how many mornings present themselves. But tonight I’m reminded that healings happen step by step and often just when we’re about to give up. Perhaps this is the way we learn to hope–and therefore–breathe again.

Quotes from CoCo (Marcus)

"

We can hang on and put everything safely in its place, and then at some point, we’re forced to let go.

"

a Mexican soap opera (blog #10)

Late last night, right before I went to bed, I noticed the lymph nodes in my armpits were swollen. Like, one minute they weren’t swollen, and the next minute they were. (The above photo was taken earlier in the evening, before all my pit problems.) I tried to raise my arms to take my shirt off, and it felt like someone had inserted two lemons up in there, one on each side. So I Googled the problem, decided it was cancer, and went to bed hoping for a miracle. (I don’t recommend using Google when you don’t feel well.)

This may come as a surprise, but the miracle didn’t show. I woke up in the middle of the night with chills. So I put on a shirt, grabbed an extra blanket, and went back to sleep. Then I woke up again with a fever.

When I was a teenager, I started getting sinus infections, although I’m not sure that I understood back then exactly what was going on. I just knew that I would feel terrible, gross, and lethargic. For the last twenty years, on average, I’ve probably gotten a sinus infection once every two to three months, each infection lasting a couple of weeks. Looking back, it feels like I have just as many memories of being sick as I do of being well.

For the longest time, I believed that getting sick was a result of sin because, you know, I’m such a terrible person. So I thought if I could just follow the right rules or say the right prayer, I’d stop getting sick. Well, I guess God’s pretty hard to please, since I could never seem to get better.

At some point, I stopped believing that God worked that way. But as I think about it now, I realize that I still put a lot of pressure on myself because I started believing that I could get better if I just followed the right rules in terms of diet and holistic health (which, by the way, didn’t work any better than following God’s rules).

Even now, whenever I get sick, there’s part of me that feels I’ve done something wrong, like it’s my fault. It’s a lot better than it used to be, but it’s the most frustrating thing, this feeling like I’m doing everything I know to do, and I’m still getting sick on a regular basis.

Several years ago, I dated a guy who looked a lot like Buddy Holly. Honestly, he’s probably the kindest, sweetest person I’ve ever dated. But he was also a lot younger than I was, and my therapist says it’s really hard to date someone whose brain hasn’t fully developed, especially when yours has. Anyway, the night before we broke up, I’m sitting up in bed, and he comes in the room and straddles me like I’m horse. (As it turns out, he didn’t want me to run away.) And then he starts wagging his finger in my face and says, “You told me you loved me, and then I fell in love with you, and NOW you’re telling me you don’t know what you want? WELL YOU BETTER FIGURE IT OUT!”

When I told my therapist this story, she said, “Did he think he was on a Mexican soap opera?” So now that’s what we call him on the rare occasion his name comes up—Mexican Soap Opera. (I’m sure he has names for me too.)

So the next day, when things are seriously over, he starts crying. And he says, “I did everything right.” And I start crying too because he did, and I know what that feels like, to work your ass off in a relationship and have it turn to shit anyway. I know what it’s like to spend all your money and time going to doctors and alternative doctors—pharmacies and health food stores—and still get sick. And all of it sucks. All of it feels like failure, like you’re not good enough.

All of it feels like a Mexican soap opera.

A couple of months ago, finally, I had sinus surgery. I could probably write a blog post about that experience alone, so I’ll spare you the details for now. But as it turns out, it wasn’t God’s fault, and it wasn’t my fault either. I’m sure you’re excited to hear about it, so here’s a picture from the day of the surgery to hold you over.

Getting back to my swollen armpits, I spent this afternoon feeling frustrated about not feeling better, about getting sick—again. My consolation was that I wasn’t sick with a sinus infection. This was a NEW problem, which actually made it feel less like a failure. So early this evening, I went to a walk-in clinic, and the doctor squeezed and poked my armpits like he was shopping for avocadoes.

He said that I had a bacterial infection, probably due to the fact that I had sinus surgery recently and two fillings at the dentist a couple of days ago. He said he couldn’t point to one specific cause, that it was “a soup.” (This reminds me of the time my urologist told me that “dilution is the solution to the pollution,” and I said, “Did they teach you that in medical school?”) Anyway, the doctor today said surgery and dental work are invasive procedures, and it’s easy for the bacteria in your body to get out of hand. One minute things are fine, and the next minute things turn into a Mexican soap opera.

So the doctor prescribed an antibiotic, and he told me I shouldn’t wear deodorant for a while, which I’m sure all my friends will appreciate.

Somewhere I heard the story about a mystic or a monk who performed a wedding for a couple, and during the ceremony, he took a stick or something and started lightly tapping them over their heads. He kept saying, “Pain is not a punishment. Pleasure is not a reward. Pain is not a punishment. Pleasure is not a reward.”

I guess for the longest time, I’ve put all his pressure on myself when it comes to my health (and relationships and money), like, YOU BETTER FIGURE IT OUT. But I think the lesson about pain and pleasure is the perfect reminder on days like today. Just because I feel bad, it doesn’t mean I’ve done something wrong. It doesn’t mean life hates me. Likewise, just because I fell good, it doesn’t mean I’ve done something right. Sickness and health come and go, just like everything else. It’s just the way life is. And even if it’s not, I don’t have to have all the answers. (Obviously, that’s what Google’s for.)

Quotes from CoCo (Marcus)

"We all have inner wisdom. We all have true north."