Unshakeable (Blog #371)

Today I feel uncomfortable in my skin. I have a dry patch on my elbow, and my knee is itching for no apparent reason. A couple other areas are red, slightly inflamed. Part of me thinks, maybe I could try a new diet, become a vegan or something like that. Another part of me, a bigger part of me, thinks, Fuck it. I’m tired of not having answers about my physical body and tired of waiting. Tomorrow I’m going out-of-town to dance and celebrate the one-year anniversary of the blog with my friend Bonnie, and tonight I freaked out thinking I needed to buy a new outfit, at least some shoes and a t-shirt. Finally I decided, Fuck that too.

So now I’m doing laundry. With any luck, tonight’s blog will be short and simple, and I’ll be able to get some rest.

Yesterday I picked up a printed copy of “year one” of the blog from a local printing shop. I used a website to get all the posts arranged in chronological order, so it’s quite literally a day-by-day account of my life for this last year, the majority of my actions and emotions down on 350 front-and-back pages. At some point, I’d like to re-read all the posts word-for-word, but I did flip through them casually yesterday, scanning the pictures, catching a few sentences here and there. It was the weirdest thing, to see my life on paper and have a concrete record of my thoughts. So many memories and feelings came rushing back. Good days and bad–I was there for every frickin’ one.

I was there when I found a possum in my pillow.

Whenever I write for this project, my goal is to somehow, someway, end on a high note, to say something encouraging to myself and others. I don’t mind saying this is a hell of a lot easier on some days than others. Some days, like today, I’d really just prefer to crawl in bed and pass out, escape. But after looking back at several posts yesterday, I’m grateful for all the long hours I’ve put into this project. I’m over-the-moon if other people get anything out of it, and I also now see it largely as a love letter to myself. Y’all, it’s one thing to read encouraging words that came from someone else, and it’s quite another to read the encouraging words that came from your own heart and soul. There’s nothing like it.

If you want to cry, you should give it a whirl.

Honestly, since making it to the one-year mark, I’ve thought about throwing in the towel. Just like I’m tired of not feeling well, I’m also tired of working so hard and pouring my guts out. I go back and forth on my decision to keep going. Some days I’m gung-ho; other days, ho-hum. On ho-hum days, days like today, it’s hard to sit down at the keyboard. I think, Come on, here we go again. Earlier tonight Bonnie asked what I was going to write about today, and I said, “I truly have no idea.” Even when I started tonight’s blog, all I could think about was how frustrated I feel, and–believe it or not–a large part of me wishes I could talk about something else. I’d much prefer to sit down every night and “fake it,” be funny, or tell everyone (as my dad says), “If I were any better, I’d be twins.” But then again, that wouldn’t be completely true, nor would it be true to the project.

One other cool thing about having a written record of the last year is that–because it included good days and bad–I’m able to look back now and see that I somehow made it. There were a lot of high points, and even on the worst days, days when I felt uncomfortable in my skin or didn’t have a new outfit, I survived. More often than not, I was surrounded by friends or family, and–most importantly–I was always there. That’s probably one of the biggest takeaways from this last year, learning to support myself more, realizing that even in the midst of suffering there’s a part of me that’s unshakable and always up to the challenge, this still, small voice that says, “Go easy on yourself. Get some rest, baby. Things will look different in the morning.”

Quotes from CoCo (Marcus)

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Suddenly the sun breaks through the clouds. A dove appears--the storm is over.

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Pump the Brakes, Junior (Blog #370)

Oh hey, it’s three-thirty in the morning, and I’m so ready to go to bed it’s not even funny. To be clear, in the above photo I’m yawning–not writhing in pain or having an orgasm, although I personally think it looks like some combination of the three. Anyway, I just got home from my friend Justin’s house. We decided to catch up after I taught a dance lesson this evening and somehow got stuck in a six-hour-long conversation. (We both like to talk and both like to listen.) At two-thirty, right about the time Justin began talking about world politics and the fabric of society (I’m not kidding), my brain started shutting down. Then I thought of the blog. “I’ve really got to go,” I said.

Now I’m at home, trying to string two thoughts together. For as difficult and challenging as yesterday was, today was a gem. A decent night’s rest did me a world of good, and yesterday’s daunting troubles seemed to have shrunk down to manageable sizes with a little slumber. This afternoon I saw my therapist, and when I told her about yesterday’s visit to the immunologist and subsequent phone conversation with the insurance company of the guy who read-ended me last year, she said, “It was a lot of information.” I laughed and said, “Yes, it was A LOT of information.”

This is one of my therapist’s deals I’m not sure I’ve talked about before. She often refers to things that happen as information or data. Like, if I met someone I really liked, and they stopped returning my messages or let it slip that they hate children, my therapist might say, “That sounds like an important piece of information.” What I like about this way of looking at things is that it’s neutral. It doesn’t judge a behavior or situation as right or wrong, but simply as a fact (he lied to me, the doctor said we needed to run more tests, the insurance company offered me a low sum of money to settle). Also, it implies that as we gather more information, we can (and should) adjust our behavior and attitudes accordingly (I’m moving on because I don’t date liars, okay–getting a diagnosis is going to take longer than I thought, I may need to speak up for myself or consult an attorney).

Anyway, I guess yesterday was information overload, more important facts than I could handle at one time, too many adjustments to make. What I’m learning in situations like these, to borrow another phrase from my therapist, is to “pump the brakes, Junior.” In other words, when I’m overwhelmed, I absolutely have to slow down. In terms of my health, no matter how much I want an answer, I have to be willing to adjust to the speed of the situation. My therapist said it was a matter of patience, which she said was a tough muscle to work out, but absolutely worth the effort. “I hate being a Debbie Downer,” she said, “but you’ll probably be working on patience for the rest of your life. It’s just the way life is.” She paused. “But it does get better.”

I guess pumping the brakes and patience go hand-in-hand. I’m usually rushing around, thinking I need to find answers “now,” but what I like about these ideas is that they suggest I don’t have to hurry. Rather, I can take my time, take in new information, and adjust accordingly. Now it’s four-ten in the morning, and part of me is “rushing” toward my typical thousand-word word count. But my eyes are heavy, and my ears are starting to itch, historically a pre-cursor to my breaking out in hives. (I just took some Benadryl, so I should be fine.) Still, I know I need to respect this “information” and adjust my behavior. I need to pump my brakes and cut tonight’s post short, trusting that I’ll still get to wherever it is I’m going even if I have to move a little slower to get there.

Quotes from CoCo (Marcus)

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We’re all made of the same stuff.

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Surely This Too Shall Pass (Blog #356)

What a frickin’ terrible day. (Hi, my name is Marcus, and I have a bad attitude.) Yesterday I wrote about a skin rash that’s recently developed on my scrotum. (For everyone who wrote or called me in response and asked, “How’s your penis doing?”–Thank you, your support means the world to me and Junior.) Anyway, this morning I saw my dermatologist. Convinced my problem was related to my family’s change in laundry detergent, I hoped he’d simply look things over, tell me the worst was behind me, and recommend a different soap. Instead he looked things over and said, “I’ll be right back. I’d like to do a biopsy.”

Y’all, if you’ve never had a chunk of skin removed from your private parts, I don’t recommend it. Like, if you’re ever given the option to have it done, go to a movie instead. Granted, it wasn’t unbearable. The rubbing alcohol followed by the shot for numbing the area were the worst parts. (Yowza.) I didn’t actually feel the skin removal. But then the doctor cauterized my flesh back together with what essentially amounted to a miniature cattle prod, this little magic wand that just so happened to be plugged into an electrical outlet. “Is that the sound of my flesh burning?” I asked.

“Yes, and the smell,” he said.

The doctor said the biopsy should take a week to get back, but that my “situation” could possible be psoriasis, which, he was encouraging enough to point out, isn’t curable. (I personally take serious issue with this idea, that a magnificently intelligent body and universe can produce a problem but not a solution.) “But we don’t know that’s what it is,” he said. “It could be a form of eczema, or even cancer. There are, after all, 3,000 skin conditions in dermatology.”

Uh, is this supposed to be a pep talk? I thought.

“So this just, like, popped up?” I asked.

“Yes,” he said. “There has to be a first day for everything.”

I still can’t decide if he was being funny or serious.

Before I left his office, the doctor wrote me a prescription for a stronger steroid cream than the one I’ve been using, so I went to Walmart to have it filled. While I waited, I picked up some Epsom salt to use in the bathtub, since that did seem to help when I tried it a couple days ago. Also, I bought some “free and clear” detergent for sensitive skin, even though the doctor said he thought the fact that this problem showed up after our detergent change was a coincidence. My logic in buying it was that I have to try something. Also, considering the fact that my skin has been extra sensitive and full of histamine since last year when my big sinus infection drama started, why not do everything I can to avoid making it any more irritated than it already is? To that end, I’ve been doing laundry all evening, washing my sheets, towels, and every piece of clothing I own. (This is where being a minimalist and not owning many clothes comes in handy.) So, that’s why I look naked in the above picture–all my shirts are hanging up to dry.

I’m starting to think of my body as a gypsy wagon.

Tonight I spent some time reading about psoriasis and skin conditions online. The “granola people” (natural health food folks) claim skin problems can be caused by anything from yeast overgrowth to parasite infestation. Both thoughts terrify me, and yet I can’t stop reading about them. Currently I’m thinking about every even-slightly red spot on my body and scaring myself to death, imaging myself turning into The Elephant Man. Since these last few months have been one medical problem after another, I’m starting to think of my body as a gypsy wagon bouncing down a rocky road–everything falling off left and right.

Regardless of the cause of various skin conditions, the consensus on the internet says diet is “the answer” (along with these supplements that just happen to be on sale, of course). Be a vegan, eat Paleo, whatever–basically cut out sugar, wheat, dairy, coffee, and alcohol–or, in other words, your entire social life. Honestly, I’ve tried strict dietary changes before. And whereas they do help, they’ve yet to produce any miracles. Not that I’m unwilling to try again–eating clean would surely only help my body–but it takes a lot of willpower, energy, and focus to “eat right,” and–quite frankly–I’m out of all three of those things at this point in my life.

Now I’m ready to go to bed. Each night before I fall asleep, part of me hopes that all these physical problems that just popped up will disappear while I slumber. Sometimes I think of chronic health problems I’ve had in the past that eventually went away and remind myself that my body truly is capable of healing. I can’t think that healing has ever happened as fast as I wanted it to, but it has happened over and over again. So tonight I’m telling myself that if “there has to be a first day for everything,” then there has to be a last day for everything too. Surely nothing in this universe comes to stay. Surely this too shall pass.

Quotes from CoCo (Marcus)

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Boundaries aren’t something you knock out of the park every time.

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Stretched (Blog #354)

For the last several days I’ve been in Houston, Texas, at Lindyfest, a large Lindy Hop (dance) convention. Yesterday was the final day of the event, and I stayed up until almost four this morning dancing with and talking to both old friends and new. When I finally called it a night and got back to my room, I took a hot shower and absolutely passed out. Since my roommate took off yesterday afternoon, I had the bed to myself and didn’t have to worry about whether or not I would snore or anything.

And for the record, my roommate said I snored one night, but not the others. (Phew.) “That’s much better than I figured,” I told him.

This morning I woke up a little after nine in order to eat breakfast before the buffet downstairs closed. My plan was to go back to my room after eating and take a nap before checking out at noon, but I realized at breakfast that if I left at noon I’d get stuck in Dallas traffic on the way home. So I went with Plan B, which was to drink an entire pot of coffee; suck it up, buttercup; and hit the road.

Y’all, I hate to brag, but you’re basically looking at a road magician. Somehow–I can’t reveal my secrets–I managed to transform an eight-hour drive home into a ten-hour one. (Abracadabra!) Okay, okay, you twisted my arm. I stopped three times to fill up with gas and use the restroom. Also, I COMPLETELY missed my turn to get onto Interstate 40 in Checotah, Oklahoma, the birthplace of country-music superstar Carrie Underwood. Anyway, I seriously don’t know how it happened. I must have been singing along with Justin Beiber’s version “Despacito.” The next thing I knew, I was in Muskogee, Oklahoma, thinking, Wait a damn minute, this doesn’t look right.

Bom, bom. (That’s a lyric from “Despacito,” Mom.)

As it turns out, I was twenty-two miles north of my missed turn. Well, what can you do except turn around? Like, I started to fret about the whole thing and blame myself for not paying better attention, but I honestly didn’t have the energy for it. So instead I whipped Tom Collins (my car) around and headed back south. Effectively, the “detour” added an hour to my trip. That being said, it also gave me more time for Beiber Fever, so I don’t see the mishap as a complete loss of time.

Now it’s ten-fifteen at night, and I’m back home in Van Buren. I’m sitting at Waffle House and just scarfed down my first meal since breakfast this morning in Houston. Well, unless you count a Big Gulp full of coffee as a meal. Anyway, I’m blogging here rather than at my parents’ house three minutes away because when I get home, I want to be home. I don’t want any work to do.

I think this is all I have to give for now. I’ve been pushing both my mind and body a lot lately, and I’m worn out. In more than one respect, I feel like I’ve been stretched to my limit. But today in the car I thought a lot about something one of my new friends (Matt) said last night. We were talking about tattoos, and he said he had one on the side of his rib cage, an arrow. (I didn’t see it, but it supposedly points toward his nipple. Like, I don’t know, in case he forgets where his nipple is located.) Anyway, Matt said the arrow reminds him that sometimes you have to go back before your can go forward. So I’ve been thinking that whenever you feel as if you’ve lost your way, whenever you feel stretched, and whenever you feel more pressure pushing on your back than you think you can handle, perhaps that pressure is exactly what’s required in order for you to soar.

Quotes from CoCo (Marcus)

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When we expect great things, we see great things.

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Walking Through the Woods (Blog #347)

This afternoon I saw my new dermatologist (my old one stopped accepting my insurance), and I showed up with a list of problems. Eight, to be exact. I’ll spare you the details, but the doctor listened then answered my questions one-by-one. Always overly worked-up about any health concern, I half-expected him to say, “It’s hopeless–you’re a leper,” but he didn’t. As a matter of fact, he acted as if he’d seen it all before, which I suppose he has. Anyway, he said I should keep an eye on a small cyst, recommended I use different powder to keep my skin dry, and cauterized some broken blood vessels on my face (ouch). Then he said, “As for your moles, don’t grow any more. There–another problem solved.”

When I left the dermatologist’s office, I went to the Department of Motor Vehicles to get a duplicate registration for my antique car. (I lost my old registration.) According to the “take a number” number I took when I walked in, there were forty people ahead of me. Since there were a hundred the last time I stopped by, I decided to stay.

Y’all, I seriously think the DMV was modeled after one of Dante’s Circles of Hell. It’s not cute to look at, the lighting is terrible, and the chairs are uncomfortable. (Clearly a gay man was not involved in the design process.) Additionally, everyone who goes there has to wait, and yet there aren’t any magazines to look at, nor is there any coffee to drink. Even the place where I get my oil changed has coffee! The people who work at the DMV call out numbers one-by-one, but if you don’t jump straight up like a jackrabbit when it’s your turn, they skip right over you. (Three-thousand and forty-six!) It’s worse than bingo at the Methodist church. And when they do call your number, it’s not like you get to ride Space Mountain or anything fun as a reward for all your time in line. Nope–you get to hand them money.

What a racket.

My standards have, quite frankly, plummeted as of late.

After it was all said and done, I think I spent about forty-five minutes at the DMV today, and the replacement registration only cost me a dollar. So life could be worse. (Could it, Marcus?) Afterwards, I went to Walmart to pick up the powder the dermatologist recommended. Y’all, I was so excited because the doctor gave me a coupon–two whole dollars off! I would normally shudder to use a coupon, but my standards have, quite frankly, plummeted as of late. So I found the powder, pulled out my coupon, and got in line. (Again, with the waiting.) Well, I immediately got pissed off because the cashier started talking to the customer in front of me about her brother-in-law, who recently had a stroke. She went on and on about it, then told the customer, “Have a blessed day.”

Okay. I’m not TRYING to be a complete dick here. I’m sorry this lady and her family have problems. I get it–I’ve got problems to. (I write a blog about them.) But as a former business owner, I just don’t think it’s appropriate to verbally vomit on your customers. All right–so this was the mood I was in–a little irritated–and then it was my turn to check out. Handing the lady the powder, I proudly presented my coupon. Well, shit. She said it was expired. Realizing I hadn’t even bothered to look at the print on the back, I shrugged my shoulders and said, “Okay.” But then she held the coupon in my face and recited the expiration date to me. “Twelve, thirty-one, two-thousand-seventeen.”

I said, “I believe you.”

Waving the coupon around as if she were swatting at flies, she replied, “Sometimes they print them really small, but this clearly says it expired a few months ago.”

I said, “I believe you.”

Oh my gosh, I was so mad. Like, let it go, lady. (Let it go, Marcus.)

After this disconcerting encounter, I saw my therapist. For a while we discussed my health and how I’ve felt so beat-down, kicked-around, and worn-out lately. My therapist said, “I’m not a medical doctor, but I think you’re going to outlive all of us. This is a difficult patch for you, but I really believe you’re going to come through it.” Then she said, “We’ve entered a new part of the woods in your warrior training. (She’s never referred to our sessions as “warrior training” until today–GRRR!) This is the part where you have to keep believing in yourself no matter how difficult things get.”

Y’all, I hate this part.

Later my therapist and I (the grammar nerd in me almost called the blog, My Therapist and I) discussed my upcoming blog birthday. Today’s blog is number 347, so that means that in less than three weeks, I will have met my original goal–one year–365 days in a row of writing. I can’t tell you how much this stresses me out. Granted, on one hand, I’m getting excited. I’m proud of what I’ve accomplished here and intend to celebrate. On the other hand, I’m terrified because I don’t know what to do next. Do I keep blogging or do I quit and work on other projects? If I keep blogging, do I change topics–do I change blogs? These are questions I ask myself.

This evening I’ve been feeling “all the pressure.” When I got home earlier, I noticed a red patch of skin that must have “flared up” after I left the dermatologist office, so I’ve been freaking out about it. What if something is horribly wrong? Also, I’ve been thinking that I’ve “got” to figure out the blog. My therapist and I discussed the possibility of my adding a donation page for those who would like to support me and this project (something I’ve been hesitant to do), and I’ve been worried about making “the right” decision.

Honestly, I’m overwhelmed. Life has been a lot to handle for quite a while now, and my plate is full. (Did you hear that, Lord? My plate is full. F-U-L-L, full.) I know this is why I’m irritated by every little thing and am overly concerned that something else, even something small, will go “wrong.” This last weekend I was at a coffee shop, and a little kid came out of the bathroom and was trying to open the door to go outside. Just a toddler, he was leaning on it with his entire body. Looking at me, he said, “I’m not strong enough to open it.” This is what life feels like for me lately, like I’m doing every damn thing I can here, and doors still aren’t opening.

We all walk through the woods together.

Yes, I did help the little kid open the door. And since then, I really have been working on coming around to the idea of letting others help and not trying to do everything myself. Today my dermatologist said, “Call us if things get out of hand.” (Uh, sir, things got out of hand a long time ago.) I know my therapist is there if I need her. I still haven’t settled everything from the car accident I was in last year, and tonight I had two attorney friends say, “Let us know when you want us to step in. We do this all the time.” This is really good for me to remember, that I’m not alone in all this, that just because I’m struggling doesn’t mean I’m struggling alone. We all walk through the woods together.

Quotes from CoCo (Marcus)

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Sure, we forget it plenty of times, but on the inside we’re all shining. This is what gives me hope, knowing that we are all radiant.

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The Big Bounce (Blog #346)

Last night I went out to eat with a friend and had a great time. Since I’ve been dragging ass lately, I’d considered not going but thought, I’ve got to get out of the house, I’ve got to have fun. Well, I’m glad I did. The food was good, the company was better, and I drank enough wine to actually think, Eh, life isn’t so bad, I’m not THAT sick.

As it turns out, I also drank a lot of coffee. When I got home I finished last night’s blog, which I’d started earlier in the day. (You should read it–it’s good.) Then I watched one episode of Breaking Bad, intent on falling asleep afterwards. With the time change, this was around four-thirty in the morning. But then I just lay there, wide awake. Eventually I downloaded three phone apps (applications, Mom) to help me better understand the phases of the moon and the position of the planets. I don’t want to become an astronomer, but I would like to better grasp the elementary movements of the heavens. Most of the time, “up there” is a complete mystery to me.

Best I can tell, I fell asleep around seven in the morning.

This afternoon I woke up with not much of a voice. I’ve had all this sinus crud lately, and I guess I overused my vocal chords at dinner last night. It was worth it, but now I just need to take it easy. I’m supposed to go out-of-town later this week, so we’ll see how I recover. Currently I’m thinking of my health like one of those paddle balls, the kind with a paddle that’s attached with a little rubber ball with elastic string. In this scenario, my physical body would be the little ball, and life itself would be the paddle, kind of smacking me around.

I go up, I come down. I go out, I come back in.

Boing, boing, boing.

My “big event” today was going to Walmart. (I hope those words never come out of my mouth again.) Anyway, I went to pick up a prescription (anti-histamine), but ended up buying groceries also, since I figured I could use some road snacks if I go out-of-town. When I got home, I put away the groceries, ate “lunch,” then started to read the last one-hundred pages in the book about quantum physics I’ve been reading lately. But then I fell asleep.

When I woke up, I finished the book. Honestly, I skimmed a lot, since the information was a lot to take in. Still, it was fascinating, and I was particularly intrigued by a discussion about The Big Bang. Apparently there’s evidence that rather than exploding at some point in history and continuing to expand “forever and ever, amen,” the material of the universe will expand “so far,” then begin to contract. In fact, some scientists believe that the universe was contracting before The Big Bang, that it was basically compressing itself like some sort of cosmic Jack-in-the-Box, and that The Big Bang was the “surprise” moment. For this reason, some now refer to whole process as The Big Bounce, almost like the universe itself is a paddle ball that goes out and comes back in again.

If it feels like you’re falling, don’t worry.

The book didn’t mention it, but this is an idea that’s proposed in a lot of spiritual philosophies, that the universe is like your very heart that beats. It expands, it contracts–it expands, it contracts. Universes are created, universes are destroyed. The whole process begins again. Personally, I like this idea. It makes me think that everything that’s going on “down here” and “up there” is really quite natural. Like, it’s all part of the game. Specifically, it reminds me that for every destruction, there’s a re-creation. It reminds me that nothing in life sits still. No matter how terrible your circumstance, it absolutely has to change. So if it feels like you’re falling, if it feels like life has thrown you down to the ground, don’t worry. Just like a rubber ball or the universe itself, you’ll bounce back.

Quotes from CoCo (Marcus)

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You have everything you need.

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A Lighthouse (Blog #343)

Now that my dad’s back from the hospital and is on a strict healthy-living plan, my family owns a new set of bathroom scales. (They’re the fancy kind with a digital readout, so try not to be jealous.) Y’all, if there’s anything positive about being chronically sick and having little to no appetite, it’s weight loss. This afternoon I used the new scales and found out that I’m lighter than I’ve been in four years. I’m thrilled, of course, but this news came as a complete shock. I mean, in terms of diet, I haven’t even been trying lately. I’ve been eating toast with butter and high-fructose-corn-syrup jelly for breakfast for weeks now. All those years of trying-trying-trying, and now that I’ve practically given up caring, the pounds are just sliding off. Go figure. Apparently all it takes is two rounds of influenza.

Uh–count your blessings?

Physically, I’m still worn out, but it could be a lot worse. Today I rallied long enough to do some paperwork, and I’m thinking I may get out of the house before the weekend is over. Also, I took a shower. Y’all, I hate that I consider this bragging–a little paperwork and a hot bath–but I do. God, there’s nothing like the flu on top of a chronic sinus infection to seriously lower your standards and dramatically shift what ranks as an accomplishment in your life. Hey, everyone, you better sit down for this–I bathed.

Emotionally, I have less to offer than I do physically. Yesterday I got some bloodwork back from my doctor, and today I got a message from her about it. She said my CBC results were normal and that my immunology results (which came back as “in range”) would need to be discussed with my immunologist. I’m assuming she said this because he’s the one who ordered the tests and he’s also the specialist–for a reason. At the same time, I hate having to wait an entire month in order to get any explanation at all. Lately my health feels like one of those rush-hour traffic jams caused by heavy construction or a five-car pile-up–like I’m going nowhere fast. It’s so frustrating.

If you’ve never felt this way, it’s exhausting. I don’t recommend it.

Don’t let anyone scare you straight.

I guess I’ve been exhausted for a while now. Some days are worse than others, but I’m honestly worn out by life. It feels like the universe has wadded me up and is running me back and forth across a washboard. I’ve talked to my therapist a lot about this, and recently she said, “Marcus, what are the two things I always tell you? First, don’t let anyone scare you straight. Second, whenever we are the most worn out, the most tested, that’s when something good comes along.” Then she added, “I can’t say this about everyone, but I never worry about you. I’ve never worried about you. I know something good is coming.”

Of course, I hope she’s right. The logical part of me realizes this storm can’t last forever. Still, there are days when it takes all the strength I have and then some to stay above water. On difficult days, I can’t tell you what a difference it makes to know there’s someone in your corner who isn’t judging you, someone who is believing in you and rooting you on. Whether it’s a therapist, a friend, or a family member, I think we all need that–a lighthouse–someone who stands strong in the midst of a storm, someone who helps us find our own way home.

Quotes from CoCo (Marcus)

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Just because you can’t see it, doesn’t mean it’s not true.

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Magnificent (Blog #342)

It’s one in the morning, and I technically started blogging almost two hours ago. That is, I inserted the above picture then quickly got distracted by YouTube videos about Walt Disney. Last night I watched a Netflix movie about him, and at the end of the film he’s quoted as saying, “You may not realize it when it happens, but a kick in the teeth may be the best thing in the world for you.” So that’s where the distraction started–I wanted to see if he actually said it (he did).

Since one thing led to another, I now know more about Walt (he preferred first names) and Disney World than I ever wanted to. Like cast members (their term for employees) have to use two fingers or their whole hand to point, since using only one finger to point is considered rude in some countries. And some of their restaurants have machines that pump the smell of tasty food out into the streets in order to lure customers in and buy, say, cinnamon rolls.

Well, shit. Now I’m hungry.

Anyway, this is how I’ve been distracting myself the last twenty-four hours, with movies and YouTube videos. Before I went to bed last night I took my temperature, and it was 101. It was back to normal this morning, but I’m pretty sure I’m dealing with the flu here. Again. Potentially a less dramatic strain than last time (just a few weeks ago), since my body hasn’t been too achy. Still, I’m full of mucus, my energy is shot, and my neck is stiff as a board. I spoke to my therapist today in order to confirm my next appointment and told her I was seriously sick and tired of this nonsense. She said, “As well you should be.”

Earlier today I re-watched the movie What About Bob? If you haven’t watched it, you should. It’s about a germaphobe named Bob who gets a new therapist then immediately cons his way into being part of the therapist’s family vacation. The therapist keeps saying, “This is not appropriate,” and “The therapist-patient relationship is built on trust, and you destroy that when you lie to me.” But Bob can’t help himself. Despite his therapist’s objections and–much like a nasty flu virus–he keeps coming back.

This afternoon I got the results of my latest bloodwork. I’m clearly not a doctor, but I think they were good. Not a single thing that was tested was out of range. On one hand, I guess it’s nice to know that I’m “normal.” Nothing appears to be glaringly wrong. But on the other hand, I was kind of hoping for something–anything–to be out of range, since I’d like an explanation for why I’ve felt so bad for so long. Again, I don’t know what the numbers mean. Recently my B12 levels tested as in range, and later my doctor said that they were actually low for someone my age. So it could be something like that.

Since my doctor has a patient portal system used to ask her questions, I sent her a message to find out more about the bloodwork. But, y’all, I’m starting to feel like Bob in What About Bob? When I logged into the patient portal system, it showed like eight messages I’ve sent since becoming a patient (eight weeks ago). Granted, I’m not knocking on my physician’s door but I feel like I’m becoming THAT guy. Part of me thinks I’m being a bother, but another part of me thinks, I’m dying over here–it’s okay to ask for help (and I’ll be glad to stop when I freaking feel better.) So I keep sending messages, and they (the doctor and her nurse) keep replying.

In other news, Dad came home from the hospital today. I said yesterday that they’d put three stints in him, but apparently it was five. Three new ones and two to replace or “beef up” the two old ones. He said the last time he had stints put in, he came home feeling like a new man. Today he said, “I do not feel like a new man.” I think this means that they are still figuring things out, adjusting his medications, scheduling follow-up appointments. Another movie I watched today (that was about a Pakistani stand-up comedian who falls in love with a white girl) was called The Big Sick. (It was slow to start but surprisingly delightful.) Anyway, I’m thinking of using this phrase to refer to our household and this time in our lives–The Big Sick.

You’ve got to believe that things can turn around.

My therapist says that I’m too bitter to die young. “Only tender, precious people die young,” she says. “So don’t worry. Your time’s not up yet.” I’m not sure if any of this is true, but it does make me smile. It does give me hope. I guess Walt Disney worked for nine or ten years as a struggling animator before he came up with Mickey Mouse. Like, it was bad. He was broke. He couldn’t pay his employees. He got evicted from his apartment and his office. His dad told him to get “a real job.” I guess the lesson is that when life does kick you in the teeth, you’ve got to hold on. You’ve got to believe in yourself and even in life, the thing that’s doing the kicking. You’ve got to believe that things can turn around, that even difficult situations–perhaps only difficult situations–can turn you into something magnificent.

Quotes from CoCo (Marcus)

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Love  is all around us.

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Tough Stuff (Blog #341)

To borrow a phrase from my sister, I feel like a bag of ass. My head hurts. My body is weak. My sinuses are a snot factory. My temperature is elevated, 99.9. Not technically “fever level.” Still, I don’t feel cute at all. If Zac Efron asked me to go out this evening, I’d be forced to tell him to come back another day. That’s how bad this is.

When will this–whatever it is–be over?

I’ve spent most of the last twenty hours in bed. Now I’m propped up in a chair, where I just ate a meal and am currently blogging. With any luck, I’ll be back in bed in two shakes of a lamb’s tail. If anyone has any medication that would knock me about for, oh, seven solid days, please leave it on my doorstep.

In other news, Dad has his heart catheterization this morning. From what I’ve been told, it took a while but went well. They put three stints in. With any luck, he’ll be home tomorrow or the next day.

I’m currently at just under two hundred words–that’s about all I have to offer at the moment. I wish I could tell you that I’m hanging in and holding strong, but I’m not. At the same time, I haven’t completely lost heart. Mostly I’m in shock. Like, This again? You’ve got to be kidding! And yet, no, life is not kidding. Sometimes it’s tough stuff. Sometimes it takes all the strength you have. Which, I hate to admit, is more than you realize.

Quotes from CoCo (Marcus)

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Help is always on the way.

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Feeling Like Sweet Tamarind Looks (Blog #340)

Yesterday I was worn out. This morning I woke up sick (sicker than I have been lately), and things have gotten worse as the day has progressed. (The day has progressed, I have regressed.) I’m assuming it’s a sinus infection. Unless it’s the flu again (that would seriously suck), it’s almost always a sinus infection, and–at least in my mind–I’ve been fighting a sinus infection for one week shy of five months now. Granted, it backs off now and then, but I haven’t felt like myself since the beginning of last October.

As the Post-It Note in the above photo communicates, I am over this.

This afternoon and again this evening I got out of the house to buy kimchi, since rubbing fermented cabbage juice on the inside of my nostrils is the only thing I’ve tried in the last five months that has seemed to make a remarkable and sometimes-quick difference. As I’ve mentioned before, it contains a specific strand of bacteria that is useful in fighting sinus infections, but the problem is that the bacteria doesn’t show up in every jar, or–if it does–can die off before the product itself reaches its expiration date. So it’s a crap shoot.

My search for kimchi this evening sent me, once again, to the Asian food market, which is basically like one big meat locker. I mean, it’s freezing. Even the check-out lady had a coat on tonight. Personally, I think they should turn the heater on, especially if they want people spend some time there. You know, get comfortable, look around. Of course, the heat would probably make the place smell terrible, since they have all that raw fish in there. But I digress. Tonight I noticed a new product on the shelves–next to the kimchi. It’s called sweet tamarind, and apparently it’s a fruit. I took a picture of it, since it looks like I feel.

Like poop.

Now this post is already longer than I intended. After going to the Asian food market, I stopped by to see my dad in the hospital. They are talking about doing his heart catheterization tomorrow. Dad said, “Marcus, you’ve got to take care of you. I’m here taking care of me, and you’ve got to take care of you. Go home. Get some rest.” So that’s what I’m about to do, get some rest. Mostly I’m trying to “hang in there.” Not that I have much choice in the matter, but I honestly don’t mind being sick now and then. But I’m tired of being generally sick then getting really sick every few weeks. (That’s my gripe, Lord. What’s yours?) In short, my emotional reserves are low. Still, I see the immunologist four weeks from tomorrow, and surely I can stick things out for another month. After all, I’ve come this far.

Quotes from CoCo (Marcus)

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It's never a small thing to open your home or heart to another person.

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